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Aicardi Syndrome

Alstrom Syndrome

Barth Syndrome

Cystinosis

Pierre Robin Syndrome

Progeria

Rubinstein-Taybi Syndrome

Wegeners Granulomatosis

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Cherubs
A non-profit support group for the families and medical care providers of children and mature born with Congenital Diaphragmatic Hernia.

http://www.cherubs-cdh.org/

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Contact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.

http://www.cafamily.org.uk/

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Human Growth Foundation
Information about growth-related disorders through education, research, and advocacy. Member driven organization.

http://www.hgfound.org/

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Rare Disorders
Welcome to Rare-Disorders.com, your one stop information center for rare diseases. Although the internet has made information about many of the more common.

http://www.rare-disorders.com/

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