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Team Tamara
Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila.
http://www.team-tamara.org/ |
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The National Fragile X Foundation
Website of the National Fragile X Foundation with extensive information about the disease, its teatment, and inheritance.
http://www.fragilex.org/ |
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Tuberous Sclerosis Alliance
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
http://www.tsalliance.org/ |
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Tuberous Sclerosis Association
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
http://www.tuberous-sclerosis.org/ |
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