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Australian MPS & Related Diseases Society
Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum.
http://www.mpssociety.org.au/ |
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Genetic Interest Group
Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
http://www.gig.org.uk/ |
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Hereditary Disease Foundation
Information about this non profit organization, news, newsletters, recommended reading and contact details.
http://www.hdfoundation.org/ |
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Hereditary Hemorrhagic
Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment.
http://www.hht.org/ |
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International Society
A nonprofit organization advocating for families and caregivers.
http://www.mannosidosis.org/ |
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