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Home » Diseases and Conditions » Genetic Disorders » Organizations

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Australian MPS & Related Diseases Society

Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum.

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Genetic Interest Group

Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.

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Hereditary Disease Foundation

Information about this non profit organization, news, newsletters, recommended reading and contact details.

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Hereditary Hemorrhagic

Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment.

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International Society

A nonprofit organization advocating for families and caregivers.

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