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Listings
Alagille Syndrome Alliance
Worldwide support network for people who care about people with alagille syndrome.
http://www.alagille.org/
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Canadian Association
Works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada.
http://www.cagc-accg.ca/
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Genetic Health
Offers general information on conditions, DNA mutations, genetic testing, and research participation.
http://www.genetichealth.com/
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Hereditary Angioedema Support Group
A non profit Organization dedicated to those families that are touched by a rare blood disease known as Hereditary Angioedema
http://www.hereditaryangioedema.com/
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Joubert Syndrome Foundation
Organization, conferences and contact details. FAQs about the disease, information center and resources.
http://www.joubertfoundation.com/
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